Primary Immune Deficiency

 

■ The Charter

■ Video of the Heilman's
Children with Primary Immune Deficiency

■ Written Story of the Heilman's
Children with Primary Immune Deficiency

 

Event Details

 

The Complete Package
Everything You Need to Know About the Event.

■ Invitation

■ Save the Date

■ Sponsorship Information

■ Player/Spectator Information

■ Wiffle Ball Rules

 

Location:           St Pete Beach

Tournament:    9am to 4pm

Party:                 7pm to 11pm 

 

Registration and Information

call:                     (813) 944-2558

Email:    cramos@medicalchampion.com

 

Information on
Primary Immune Deficiency

 

■ PI Awareness Campaign – Public Service Announcements

■ Primary Immunodeficiency: When the Body's Defenses are Missing

■ Wikipedia Definition PI Deficiency

■ Download an Immune System Poster to Take to Your Pediatrician

 

Thank You - the 2009 Event Was a Great Success

See Pictures and Video of the Event

 

2010 Info to be forthcoming.....2009 Event Information is Below
July 4th Wiffle Ball Tournament at Don CeSar Resort on St. Pete Beach

Ear infections, pneumonia, sinus infections – multiple rounds of antibiotics with little effect… 

The world of a child with Primary Immune Deficiency can mean lots of doctor’s appointments, sick days at home, and medicine. Parents nurture their sick little ones, invest countless hours learning about the condition, and await the days when their children will live the healthy lives they deserve.

Primary Immune Deficiency Disease has plagued up to ½ million people in the United States.  Immunodeficiencies are disorders in which part of the body’s immune system is missing or functions improperly. Primarily genetic, these disorders are diagnosed most frequently in children less than one year of age.

James and Connie Ramos’ two beautiful children, Abigail and Aidan, have been diagnosed with Primary Immune Deficiency.  Not only have they committed to learning everything they can for their own children’s well-being, they’ve committed to helping fund research to understand more about the cause and cure for families who will fight the same battle in the future.

Their physician and co-champion, Dr. John Sleasman, is the Professor and Chief of the Division of Allergy, Immunology and Rheumatology at the USF Department of Pediatrics.  Together with the leadership at All Children’s Hospital, the group will establish an Allergy/Immunology Program Restricted Fund to support research efforts for children with both basic allergies, and Primary Immune Deficiency. The brand new Immune Parameters Laboratory and Infusion Center will exist within the new All Children’s Hospital slated for completion in December, 2009.

With an innovative and fun twist on fundraising for the cause they hold close to their hearts, James, Connie and their committee will host the First Annual Wiffle Ball Tournament this 4^th of July!  The tournament and party will be held just south of the Don CeSar on St. Pete Beach.  Old-fashioned Bar-B-Que, kids games, and wiffle ball will fill the day, and the evening party will continue with special room rates, music, and fireworks.

To make your reservations and support this worthy effort, please call Connie Ramos at #813.944.2558, cramos@medicalchampion.com, or visit www.allkids.org.  Checks can be made payable to All Children’s Hospital Foundation.  Thank you in advance for your support!

For the Complete Package, All You Need to Know about the Tournament, click here.

For Sponsorship Opportunities/Availability and Registration, click here.   

For Player/Spectator Information and Registration, click here.

For Wiffle Ball Rules Specific to our Tournament, click here.