Tickets / Sponsor Details
■ Event Agenda
■ Invitation w/ RSVP Card
■ Event Registration Package
■ Sponsor Registration Package
Event Details
■ Save the Date
Saturday, July 3rd
Havana Nights Party
Sunday, July 4th
Wiffle Ball, Beach Bash BBQ,
Poolside Band Party & Fireworks
Special room rates, call 800.282.1116
Registration and Information
Phone: (813) 944-2558
Email:cramos@medicalchampion.com
Press Information
■ The Island Reporter, June 2010
■ Link to Channel 10 Newscast of JMF Naming at All Children's Hospital in St Pete, FL on May 27th.
Information on
Primary Immune Deficiency
■ PI Awareness Campaign – Public Service Announcements
■ Primary Immunodeficiency: When the Body's Defenses are Missing
■ Wikipedia Definition PI Deficiency
■ Download an Immune System Poster to Take to Your Pediatrician
Thank You - the 2009 Event Was a Great
Success
See Pictures
and Video of the Event
July 4th Wiffle Ball Tournament
at the Don CeSar Beach Resort on
St. Pete Beach
Ear infections, pneumonia,
sinus infections
-
multiple rounds of
antibiotics with little effect…
The world of a child
with Primary Immunodeficiency can mean lots of doctor’s
appointments, sick days at home, and medicine. Parents
nurture their sick little ones, invest countless hours
learning about the condition, and await the days when their
children will live the healthy lives they deserve.
Primary
Immunodeficiency (PI) causes children and adults to have
infections that come back frequently or unusually hard to
cure. Most Primary Immunodeficiencies are
genetic disorders; the majority are diagnosed in childhood,
although many may not be recognized until adulthood. It
affects as many as one million Americans, and 10 million
people worldwide.
After James and Connie
Ramos’ two children had been diagnosed with Primary
Immunodeficiency, they not only have committed to learning
everything they can for their own children’s well-being,
they’ve committed to helping fund research to understand
more about the cause and cure for families who will fight
the same battle in the future. Their physician and
co-champion, Dr. John Sleasman, is the Professor and Chief
of the Division of Allergy, Immunology and Rheumatology at
the University of South Florida’s Department of Pediatrics.
Together with the leadership of the University along with
All Children’s Hospital, the group has established a
Southeast Primary Immunodeficiency Network (SEPIN) under the
umbrella of the Jeffrey Modell Foundation.
In 2009, the event’s first year was a great success. Results from these funds and awareness included a comfort & fun area for children at the brand new Infusion Center at All Children’s, a community education and awareness campaign sponsorship at the new Glazer Children’s Museum in Downtown Tampa, set to open later this year; and funding for a Genetic Analysis study at the University focused on patients with PI. In May, a Jeffrey Modell Diagnostic & Research Center will be dedicated at All Children’s Hospital, one of 72 prestigious Centers in the world focused toward the earliest diagnosis of PI and the start of a yearly Jeffrey Modell Foundation Kids Day, where immunology patients from the University and All Children’s Hospital can have the opportunity to enjoy a day out and just be kids.
To make your
reservations and support this worthy effort, please call
Connie Ramos at 813.944.2558,
cramos@medicalchampion.com.
Checks can be made payable to the Jeffrey Modell
Foundation. All dollars raised will be
matched 100% by the Foundation.
Thank you in advance
for your support!
For information pertaining to the
Jeffrey Modell Foundation, visit
www.info4pi.org.